The houses
were never locked, so I could go right in. There was no electric or heat on in
the houses. I would huddle in the corner of a room in the dark with my knees
pulled up under my chin. This way I could have my legs under my coat to keep
warm. This is the way I would sleep. Sleep was often hard to find. I was sick
and cold. I thought that I might me found dead in their house when they were showing
it to rent. I would eventually fall to sleep from being weak and exhausted. Once
I was asleep, I was out, dead to the world. I would wake up cold and stiff.
At this
time in my illness, my breathing was becoming much labored. When I did go home,
Mama would check to see is I was still alive if she couldn’t hear me breathing.
My breathing had become so loud that it could be heard in the next room.
My energy
level was getting poor. When I was home I would sleep for more that twenty four
hours. I was not eating much, I had lost my appetite, and I often had limited access
to food. By the time I turned seventeen, I was under a hundred pounds. I was
sleeping a lot at school. In study hall I would be asleep within five minutes of
going to class. The teacher was understanding and wouldn’t let anyone wake me.
Everyone knew I was sick, and we had just lost a class mate to a brain tumor.
The teachers would get on to her for having a headache, they though she was
faking it. She stop coming to class and died shortly afterwards. So when I got
sick, I was treated well at school. It didn’t hurt that I never complained, and
my illness was showing up physical.
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